Hello my name is Kohen Hildreth, and I am a 1 year old baby boy who was diagnosed with cystic fibrosis. My parents found out when I was just 10 days old. First diagnosed by my newborn screen, and confirmed by a sweat test. My daily treatments as of right now are 25-30 Enzyme pills a day (4 with every meal), A liquid acid reducer 3ML 2x a day, a multivitamin, extra vitamin D drops , albuterol 2-4x daily inhaled through my nubilizer, a pulmozyme inhaled through my nebulizer once a day, and my vest 2-4x daily which breaks up the sticky mucus in my lungs so its easier for me to cough up. I have to take the enzymes before every meal/feeding to properly absorb the nutrients from my food. The vest, albuterol and pulmozyme are all part of my airway clearance to keep my lungs working properly. With Cystic Fibrosis being a progressive disease as time goes on, my treatments and medicines will increase. My journey living with cystic fibrosis has just began, and I need your help along the way!
Cystic fibrosis is a progressive, genetic disease that causes persistent lung infections and limits the ability to breathe over time.
In people with CF, a defective gene causes a thick, sticky buildup of mucus in the lungs, pancreas, and other organs. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage, and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts. Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families!
Real progress has been for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Please consider making a donation to my Great Strides fundraising campaign today!
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress. Your gift is 100-percent tax deductible.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.