Declan is 1 year old and was diagnosed with Cystic Fibrosis at 2 weeks old. Cystic Fibrosis is a genetic disease that causes a thick sticky mucus to build up in the digestive system, lungs and other areas of the body. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage, and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients, causing difficulty to maintain a healthy weight.
Because of these chronic symptoms, Declan takes pills with every meal and snack in addition to 4 other medicines. We also do 1 hour of chest therapy as well as breathing treatments daily. We also go to CF clinic every three months so his pulmonologist, hepatologist, and team can make sure his health and weight are staying on track. Currently, there is no cure for Cystic Fibrosis and the average life expectancy is 47.
There have been some amazing medical advancements in the past few years and for that, we are so thankful. We hope and pray that one day CF will stand for cure found! By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.
Will you join us? Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. We hope to see you there on September 29th!
Ways to Help
Walk With Us: Click on the 'Join our team' button and select 'walker'. From there you can make a donation and/or start your fundraising. Joining our team does not require a donation or fundraising, however, fundraising is encouraged. The more resources we have for research the better!
Donate: Select a team member from the list below. All donations are tax deductible.
Help Us Fundraise:Click on the 'Join my Team' button and select virtual walker. Once you register you will then be given a link that you can share with friends and family.
Help Share Declan's Story: Putting a face with the cause and helping to educate others about cystic fibrosis and our fight for the cure.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.