Nancy Arrington

Declan is 1 year old and was diagnosed with Cystic Fibrosis at 2 weeks old. Cystic Fibrosis is a genetic disease that causes a thick sticky mucus to build up in the digestive system, lungs and other areas of the body. In the lungs, the mucus clogs the airways and traps bacteria leading to infections, extensive lung damage, and eventually, respiratory failure. In the pancreas, the mucus prevents the release of digestive enzymes that allow the body to break down food and absorb vital nutrients, causing difficulty to maintain a healthy weight.

Because of these chronic symptoms, Declan takes pills with every meal and snack in addition to 4 other medicines. We also do 1 hour of chest therapy as well as breathing treatments daily. We also go to CF clinic every three months so his pulmonologist, hepatologist, and team can make sure his health and weight are staying on track. Currently, there is no cure for Cystic Fibrosis and the average life expectancy is 47.

There have been some amazing medical advancements in the past few years and for that, we are so thankful. We hope and pray that one day CF will stand for cure found! By becoming a member and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. Together, we are adding tomorrows to the lives of people living with CF by supporting the search for a cure.

Will you join us? Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.