There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts. Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
Real progress has been for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. Will you join me? Please consider making a donation to my Great Strides fundraising campaign today!
Dear family and friends
My daughter had CF. She was a true warrior fighting the illness everyday. Here is her story.
I was diagnosed with Cystic Fibrosis (CF) at the age of 8 1/2 months old. My parents were given the difficult diagnosis and the probable short lifespan of less than 8 years if we remained in NY. My family moved to Georgia and we linked up with an amazing CF doctor and care team. I am now 28!
I grew up with a pretty normal childhood; besides the occasional hospital stays, medications and breathing treatments, etc. Three years ago I started to struggle more with my health. I suffered a massive hemoptysis in October 2015 and was temporarily put on a vent in ICU with an arterial bleed in my lung.
Along with my CF and usual neurological aches and pains, I have developed a continuous digestive issue. Since January 2017 I have difficulty eating causing an enormous loss of weight. My PFT numbers have dropped, although my lungs sound clear they don’t seem to want to move just yet.
I have been truly blessed with my amazing support system. I have been lucky to have the amazing doctors and nurses that I have had throughout my life. My family and close friends are always there to lend a helping hand or support when needed. Battling Cystic Fibrosis is a daily battle, but knowing that I have my support system makes it easier to stay in the battle.
I have Cystic Fibrosis, BUT Cystic Fibrosis is NOT who I am!
It's with a heavy, broken heart that I say, "Our beautiful Sarah lost her battle on November 15, 2018. She never gave up. Her body did."
CF sucks. It's sucked a lifetime of dreams and wishes, plans and adventures from Sarah. The struggle is real, the fight is every day and Sarah was in it.
Each day is hard earned but sometimes there's good news: maintained weight, pft's are up, a new medication approved, and no hospital stay this time. As a parent of a sick child you struggle with feeling helpless, with your beliefs, and with the fear. I would have given my life if it meant Sarah could still be here. Unfortunately it is too late for Sarah but many are still waiting. In here memory, we will never give up on her fight.
You can help with your helpful donation. Any amount can help! Thank you!
Please support me!
Help me reach my fundraising goal by donating to my Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting groundbreaking research and medical progress. Your gift is 100-percent tax deductible.